tag:blogger.com,1999:blog-80715134317251968472024-03-12T23:10:21.258-04:00Living with the "A" word..Adventures of a single mom (me) navigating the world of special needs, with my partners in crime, my awesome boys ("A" and little brother)! Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.comBlogger73125tag:blogger.com,1999:blog-8071513431725196847.post-12010551258589005192014-08-19T19:47:00.000-04:002014-08-19T19:47:10.784-04:00Letter to the mom who used to be me...Dear mom who used to be me,<br />
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Maybe it was a long time ago, or maybe just a few years, but I know you are out there. You are the mother who used to be just like me. You were single, you wanted to pull your hair out on a daily basis, you worked, or maybe you stayed home, but our biggest similarity is, you had children with special needs too.<br />
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Who really cares about the label? Maybe your kids had Autism, Downs Syndrome, or one of thousands of other conditions. Maybe they were emotionally delayed, maybe they had behavioral problems. Maybe it was so long ago that no one really knew what to call it.<br />
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One thing I am sure of is that like me you stayed up late at night, and you worried. You worried about tomorrow, you worried about the first day of school, you worried about your child making friends.<br />
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Were you afraid? While other moms were celebrating the
first day of school, were you paralyzed with fear? Were you afraid of
sending your child out into a very large world without you? One where
people are not always kind? Where around every corner lurks the bullies
of your nightmares? The ones who would hurt your child, emotionally,
mentally, and probably even physically?<br />
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Another thing I'm sure of is that you were tired, beyond tired. You were exhausted, not a normal kind of tired, but a exhaustion that comes from never having enough hours in the day, never being able to slow down, always moving on, to the next appointment, the next session, the next meeting.<br />
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While other moms attended PTA meetings and Little League games, did you feel like you didn't belong? Like an outsider. Were you the mom whose child didn't like sports, the mom who couldn't attend PTA meetings at school, because you were always to busy doing other things, more important things? You were in a therapy session, or attending a IEP meeting, maybe you were able to grab a few moments to yourself at last.<br />
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Did you ever get angry? When you heard other parents complaining about "trivial" things? Did you ever want to scream at them? Ask them if they know what it's like to watch their child suffer, in the hospital, with tubes, and wires, and the fear. The fear of watching your baby stop breathing, of seeing a machine breath for your child. The fear of watching the monitor as their heart rate drops, and drops some more. Seeing doctors and nurses work on your child, and not knowing, if this is it.<br />
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Did you feel guilty? Guilty about getting angry? Guilty about not having more faith? Guilty about not being thankful enough. After all, your child was still there, still with you, in spite of everything. <br />
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What happened as your child got older? Did they attend the homecoming dance, the prom? Did they call their friends on the phone just to chat? Or did they hide in their room? Playing video games, hiding from a society that made them uncomfortable? A society that didn't really care.<br />
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How is your child doing today? Are they happy? Well adjusted. Did they get married? Do they have a family? Do you have grandchildren? Or are you still caring for that child? At a time with most other parents are taking second honeymoons, and talking about their empty nest....what are you doing?<br />
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I guess my biggest question is....does it really get easier? Or do you just get used to it? Do you adjust? Are you satisfied with your life and the way things turned out? And above all, the most important thing....are they happy?Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-24099187394797170362013-10-02T16:25:00.002-04:002013-10-02T16:25:51.427-04:00Wow! It's been long, and I'm very sorry! I'm going to try to blog more often. The past few months have been very difficult for various reasons. But, I'm going to concentrate on the positives! Today we attended the Special Games Day. A and his brother attended. It was wonderful watching A have such a great time! He ran, and played, and participated. Today was a happy day, and that's all that matters today! <br />
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Here are some pictures I wanted to share with you. <br />
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Getting ready for the race.</div>
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My sweet happy boy, loving the slide! </div>
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<br />Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-66653493949590677082012-10-08T22:41:00.001-04:002012-10-08T22:41:08.716-04:00A message to the elderly woman in the waiting area...To you, yes you, the sweet looking elderly woman sitting in the waiting area at a (not so) local Cardiology office. I saw you notice us, I saw you notice us about the same time my completely adorable, red headed freckled faced son darted across the room, toward the door that leads to the parking lot. I noticed you notice me leave the front desk where I was checking in, and try to get my son to come back with me. I saw the judgement in your eyes when I finally picked up all 60 pounds of my kicking, giggling, squirming son. I saw you glance at your husband when my other child started crying, then screaming, then he started smacking at us as we tried to comfort him. I could read your thoughts....<div>
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"If that were my child I would...." </div>
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I wonder, if that were your child what would you do? How would you have handled the daily struggle. The struggle to do what is right, while the everyone in the world tells you that you are doing it wrong.</div>
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I know you don't know much about my children or my situation. How could you? I saw you notice the braces on my youngest sons legs. That much is visible. But, how could you know that he was born so early that the doctors gave him no hope. How could you possibly guess at the doctor appointments, surgeries, and hospitalizations he has endured. How can I expect you to know about my six year old's Asperger's and his ADHD? How can I expect YOU, a stranger to understand, when there are those who are close to us that really don't understand. </div>
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Those that think a good spanking would do the trick. That my child is spoiled and willful. Those that will never understand the fact that his senses are at war with themselves. That the lights buzz, and everyone is talking, and yes, that even he can "feel" your thoughts, and all he wants to do is run. Though he may be to young to understand, he can see your judgement. </div>
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So, I am sorry for whatever situation brought you to a Cardiology office, I am sorry that you felt my children ruined your morning. I hope that one day you will understand. </div>
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You will probably never read this post, but I hope that this post will help someone just like you. That it will make them want to understand more about children like mine, and more about what parents like me go through every day! I hope that this will make someone do a little research. Make them learn a little more about Autism, Asperger's, and sensory processing ...I can only hope! </div>
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Sincerely,</div>
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The extremely frazzled mother chasing a child around a waiting room, while her other child sat in a chair screaming! </div>
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Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-52222159038696166762012-09-26T19:20:00.002-04:002012-09-26T19:20:20.023-04:00Comfy cozy and Crazy socks! Day two and three of <a href="http://www.facebook.com/HomeschoolSpiritWeek" target="_blank">International Homeschool Spirit Week</a> have been a blast! Tuesday was comfy cozy day, and we made sure we were comfy cozy! A was in his pajamas and we did lessons on the couch, the recliner, and in our cozy homeschool reading corner!<br />
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Today (Wed.) is crazy sock day! So we pulled out our crazy socks! </div>
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We wore our crazy socks to a awesome field trip to a local Apple Orchard.</div>
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We are doing a unit on Johnny Appleseed and Apples, we will end the week with a field trip to a local celebration! The Apple Festival! </div>
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<br />Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-46110363522674287692012-09-24T20:28:00.000-04:002012-09-24T20:28:06.411-04:00Homeschool Away From Home Day!! We are celebrating <a href="http://www.facebook.com/HomeschoolSpiritWeek" target="_blank">"International Homeschool Spirit Week"</a> this week.<br />
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Today was homeschool away from home day! We took it to the park and then we joined some local homeschoolers for some 4-H fun!<br />
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I took some photo's to enter them into a contest sponsered by "<a href="http://www.greathomeschoolconventions.com/" target="_blank">Great Homeschool Conventions</a>".<br />
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Here are some photo's from our day!<br />
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<br />Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-88080751338545833122012-09-23T19:59:00.002-04:002012-09-23T19:59:49.079-04:00EXHAUSTION <div style="text-align: left;">
I am so tired, and I don't just mean normal end of the day tired. I mean I am exhausted, dragging, can't keep my eyes open (but have no choice) tired. Why am I so tired?</div>
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Well A and his brother little E (who may or may not have a ASD diagnosis in his future) have both decided they don't need sleep any more. I don't mean they are pushing their limits by staying up a hour past bedtime. I mean they really, truly do not seem to need sleep, so where does that leave me? You've got it...exhausted. No matter what I do, A does not want to go to bed, when I finally do get him in bed he usually starts crying...then I hear about every little thing that has been bothering him for the past six months...for example, last night (or should I say at 2:00 AM this morning) A was in tears... "I want a parrot...pig....monkey", "why won't Bubba (big brother) let me play on his computer", "I don't want to do lessons" and "why do I need to sleep? I can stay up all night....". </div>
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Little E (read more about his story <a href="http://www.preemiedays1.blogspot.com/" target="_blank">here</a>), he will go to sleep, and he will sleep good for a couple of hours, then he gets up. I tell him "E back to bed" and he goes back to bed, only to pop up again in about a hour. The last thing I remember is hearing E talking and laughing in his room at approximately 3:00 this morning. A's crying spells doesn't help and usually they wake little E up!<br />
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I remember when my boy's were newborns, I remember the exhaustion of waking every two hours, well I feel like that, except maybe worse. I sure hope this is just a phase, I wonder how long a person can go without sleep before totally going bonkers! Ugh!<br />
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Actually, I am almost used to it! I guess the body adapts!<br />
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<br />Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-59744520870219330332012-08-12T22:35:00.003-04:002012-08-12T22:35:59.121-04:00Back to school photo shoot! <div class="separator" style="clear: both; text-align: center;">
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To cute for words!! </div>
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<br />Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com2tag:blogger.com,1999:blog-8071513431725196847.post-4588026893398255832012-08-10T23:16:00.000-04:002012-08-10T23:16:13.551-04:00Curriculum, curriculum, and more curriculum!Wow, I have done a lot of shopping in the past few weeks. Mainly online, though I have picked up a few workbooks at a local book store, and some Mozart and Beethoven CD's at Goodwill! I think I have finally (one week before we start school) got my curriculum. So here is a quick list of some of the fun and amazing things we we are going to learn this year!<br />
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<li><i>Math-</i> This is the subject we struggle with the most. I admit that math is not my favorite subject, so I do stress about it. I have changed curricula multiple times, searching for the right math for "A". He likes structure, and is a hands on learner. I have researched and read, and I have finally decided to use <a href="http://www.christianbook.com/singapore-math-primary-teachers-guide-1a/9780971491403/pd/491403?netp_id=514901" target="_blank">Singapore Math- Primary Math</a>. We will be using the teacher's manual, workbooks, and manipulatives with this curriculum. </li>
<li><i>Reading</i>- One of our favorite subjects! I am sticking with the <a href="http://www.onlinereadingteacher.com/" target="_blank">Pecci Reading Method</a>, "A" made such wonderful progress in reading last year and I feel that he is currently performing above grade level. I also plan to add in spelling and basic grammar. </li>
<li><i>Science</i>- For science I will be creating our curriculum using, library books, the internet, and I will probably order kits from the <a href="http://www.theyoungscientistsclub.com/" target="_blank">Young Scientists Club</a>. I also plan to continue using <a href="http://www.movingbeyondthepage.com/" target="_blank"> Moving Beyond the Page</a>, and of course simply getting outside to learn about nature through experience!</li>
<li><i>Social Studies/History</i>- I am so excited about this! We will be using <a href="http://www.lamppostpublishing.com/early-american-history-primary.htm" target="_blank">Beautiful Feet</a> Early American History- History Through Literature. </li>
<li><i>Art- </i>For art we will do creative activities, and read about famous artists and view their works. </li>
<li><i>Music- </i>For music we will start the year off with <a href="http://www.christianbook.com/the-story-of-the-orchestra-book/robert-levine/9781579121488/pd/121489?netp_id=333363" target="_blank">The Story of the Orchestra</a>, book and CD. We will also discuss and listen to the works of famous composers, and will use the <a href="http://www.classicsforkids.com/" target="_blank">Classic for Kids</a> web page. We hope to start piano lessons this year! </li>
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I plan on lots of learning and fun. We love field trips and hope to visit the zoo, the park, the theater, and some museums! I really want to take A to see a performance by the <a href="http://www.rso.com/" target="_blank">Roanoke Symphony Orchestra</a>, if they offer performances for children that is!Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-31271779863321166372012-07-30T22:46:00.000-04:002012-07-30T22:58:54.898-04:00Finally planning!I am finally starting to get some planning done for the upcoming school year. I am finding it easier to plan each unit/subject one at a time and am planning for the first month right now. I just finished planning our first Science unit. I decided to (loosely) follow the Virginia standards to give me a starting point, and I would like A to learn things that are similar to what his peers are learning, but I am skipping around. I am also going above and beyond the state standards, simply to keep A from becoming bored! That doesn't mean I'm tying myself to standards, if there is something A wants to learn that isn't in the standards, well then we'll do it (like dinosaurs, monster trucks, or Spanish)!<br />
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I wanted to share our first Science unit with you. I have decided to do Science on Tuesdays and Thursdays and alternate with History/Social Studies on Mondays and Wednesdays, I may change my mind though and do one week of Science and one week of Social studies to keep things consistent. I'm just not sure how that will work yet! If you homeschool your elementary aged children, how do you schedule units like Social Studies and Science?<br />
<a href="http://4.bp.blogspot.com/-Z5ntESsRsZs/UBdGMMsK9hI/AAAAAAAAA5c/UyFXZ4-ubq8/s1600/animals_picture.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="http://4.bp.blogspot.com/-Z5ntESsRsZs/UBdGMMsK9hI/AAAAAAAAA5c/UyFXZ4-ubq8/s200/animals_picture.jpg" width="200" /></a><br />
Our first Science unit for first grade will be "All About Animals"!<br />
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Materials<br />
<i><a href="http://www.alibris.com/booksearch.detail?invid=11130657759&browse=1&isbn=9781609967857&qsort=&page=1" target="_blank">"Animals"</a> published by American Education Publishing. </i><br />
<i>Large folding project board to use for charts </i><br />
<i>Two smaller poster boards( also for charts)</i><br />
<i>Glue and scissors </i><br />
<i>Poster Paint or Markers</i><br />
<i>Various books about animals, habitats, etc. </i><br />
<i>Pictures of different animals cut from a magazine or printed from Internet, or you could even use pictures that you take at the zoo! </i><br />
<i>Computer or IPAD with Internet access- for related videos and websites</i><i> </i><br />
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Day one<br />
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<li>Discuss animal safety and how we stay safe around animals. </li>
<li>Discuss life needs of animals and humans </li>
<li>Read "All about Penguins" in <a href="http://www.alibris.com/booksearch.detail?invid=11130657759&browse=1&isbn=9781609967857&qsort=&page=1">"Animals"/grades 2-3</a> </li>
<li>Discuss Penguins, discuss their needs and their habitats. </li>
<li>Introduce descriptive word chart, paste a picture of a penguin on the chart </li>
<li>using descriptive words describe penguins, write the words under the penguin picture on chart </li>
<li>Color penguin activity page</li>
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Day Two<br />
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<li>Animal Habitats- discuss and review what he learned in Kindergarten ( we did a whole unit on habitats in K, complete with a field trip to the State Park) </li>
<li>Start our Habitat Chart- Chart will have the following pictures, Forest, pond, desert, ocean, arctic, and a house (for our tame animals/pets). </li>
<li>Discuss animal adaptations and defenses using pages 228<a href="http://www.alibris.com/booksearch.detail?invid=11130657759&browse=1&isbn=9781609967857&qsort=&page=1"> "Animals"/grade 2-3.</a> </li>
<li>Watch a video or read a book about Penguins (habitats and adaptations).</li>
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Day three<span style="color: #333333; font-family: Arial; font-size: x-small;"><b><br /></b></span><br />
If weather permits we will take this lesson outside, to enjoy with our pets!</div>
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<li>Read about Gray Wolves (p32) in "Animals", Bald Eagle(p30), and Giraffes(p99), add each of these animals to descriptive word chart, and habitat chart. </li>
<li>Talk about animals we have around our home (pets), discuss the difference between tame and wild animals. </li>
<li>Read page 176 Cats, page 187 dogs, and page. 190 Guinea Pigs ( all pets we have). </li>
<li>Add Cats, Dog, and Guinea pig to habitat page (lives with people as pets), and descriptive word chart. </li>
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Day four</div>
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<li>Read pull out story about frogs in "Animals" p193. </li>
<li>Compare and Contrast frogs and toads using Venn diagram </li>
<li>discuss the life cycle of a frog. </li>
<li>Make life cycle of frog book found a <a href="http://www.enchantedlearning.com/subjects/amphibians/books/froglifecycle/6.shtml">Enchanted Learning</a></li>
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Day five<br />
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<li>In "Animals" read about: Jellyfish, Lobster, Octopus ,Sea Horse, Shark, Starfish, and Whales </li>
<li>Add these animals to habitat chart and descriptive word chart, discuss adaptations. </li>
<li>Go to<a href="http://kids.nationalgeographic.com/kids/activities/new/ocean/"> National Geographic Kids</a> and learn about ocean animals. </li>
<li>Go online and find pictures of favorite animals and finish chart, make sure each habitat has at least one animal under it!</li>
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Field trip to zoo!! </div>
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</div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-7651126163006872172012-07-12T12:34:00.000-04:002012-07-12T12:34:13.132-04:00A not so relaxed stay at home mom!I don't know how many times I have heard "you are so lucky to be able to stay at home with your kids", and I know I am. I am very thankful that I am able to be here for my boy's, I am thankful that I am able to home-school "A". I am thankful that I am able to meet his unique needs, and help him learn and grow, he is after all a very intelligent little boy! I am not a stay at home mom by choice, but I am not complaining.<br />
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When my youngest son<a href="http://www.preemiedays1.blogspot.com/" target="_blank"> Elijah</a> was born at 24 weeks, we brought home a very sick four month old. "A" was diagnosed with High Functioning Autism about a year later. It didn't take me long to figure out that life was going to change drastically! I know that many of you special needs mommies know how it is. The appointments, often traveling hundreds of miles to get the medical care your child needs. Dealing with the schools, which is often a major heartache and headache, and the way it feels to hand your home over to strangers. Early intervention, therapists, social workers, nurses, aides, all of the people who spend hours a day in your home, to help with your child. I have almost forgot what it is like to just kick back on the couch while the kids take a nap.<br />
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So when I say I am a stay at home mom I am sure some people think that I do my housework, put the kids down for a nap and then turn on my favorite television show or soap. Or maybe I kick back and read for a couple of hours. That isn't how it is, at least not for me. <br />
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Housework, well that is something that I do in between appointments, sometimes I reserve housework for after the kids go to bed. Needless to say, I will not be winning any awards for the cleanest, best decorated home. The wallpaper is still half off the walls in the kitchen where I have been meaning to repaint, it has been that way for a long time! You won't find flowers in my flower bed, but you may find a few weeds! If you stop by without calling first there may even be a few dishes in the sink and my living room will probably look like a preschool! I don't even want to talk about the basement area!<br />
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Television, well what few shows I do watch I DVR, and I try not to fall asleep as I am watching at midnight or possibly later. Most days I enjoy bits of Nick Jr. and Mario jumping across the screen. I love to read, but that is something I don't do near as much as I used to.<br />
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During the school year our day is a blur of lessons, appointments, and running errands. Some days I catch myself in "survival mode", where it feels like I am just doing what I need to do to get through the day. I really try not to do that . I try every day to recognize my blessings, I realize there are others who are so much worse off. I get to wake up every morning to my boys sweet voices, many never hear their child speak. I am able to teach A at home. Many parents have no choice but go work, send their child to school, often not knowing for sure if their child's needs are really being met. I see Elijah improving every day, far past the doctors expectations. I have a wonderful 17 year old son who makes me so proud!<br />
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I know how fast things can change. I know, because I've been there. So my plan is to strive to find a blessing in each and every day, because the blessings are always there! <br />
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A and his newest pet</div>
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A and baby brother</div>
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A and big brother</div>
Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com2tag:blogger.com,1999:blog-8071513431725196847.post-83480370669093757092012-06-29T21:16:00.002-04:002012-06-29T21:16:46.230-04:00Loving summer, but looking ahead!<div class="separator" style="clear: both; text-align: center;">
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I am sorry I haven't posted in a while. I must be the worlds worst blogger! Hopefully my posts will pick back up when school starts in August and we have more going on. Yes, that is right. We haven't done school at all this summer, and I am accepting that this is okay! We are still learning, but just doing some old fashioned learning with play and looking at books! I think that a little down time will help "A". Especially after our leap into homeschooling after a difficult start to Kindergarten in public school. </div>
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I am starting to plan some for the fall though. I have been shopping around a little for workbooks and books to read. I will begin planning lessons soon! I plan on sharing my lessons on here, maybe someone else will use them and benefit from them. I am constantly borrowing ideas, it is amazing how creative people are! I am so glad that I am homeschooling in today's world of internet! </div>
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The last time I posted I told you about A's stomach problems. I am pleased to report we are doing much better, and we have a appointment in the Fall with a specialist. I am considering starting a Gluten free diet with A, but the idea scares me, so I am still in the thinking about it stage.</div>
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We are having a blast this summer, I hope you are having a great summer as well! </div>
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Summer Fun! </div>
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Playing the sensory box! </div>
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<br />Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-86737012155094367872012-06-13T00:02:00.000-04:002012-06-13T00:02:41.673-04:00Tummy problems and summer plans!So far our summer is not going as planned. It started out good, with a planned break from lessons and some visits to a local swimming pool and some backyard fun. About a week ago A became ill with typical tummy virus symptoms, but, even after a night in the hospital for dehydration his fever would not go away. We finally visited a children's ER to have his tummy x-rayed and found out that A is extremely constipated, to the point that it was making him ill. We are working on getting that taken care of without going back to the hospital but A still doesn't feel well. Prayers are appreciated! This has been a ongoing problem and is getting worse, so it looks like we get to add another doctor to A and his brother's busy schedule.<br />
So, we haven't even got around to school this summer, not even the fun field trips I had planned, but we will get there! Speaking of busy, I am having such a hard time keeping up with two blogs and I am trying to figure out a creative way to combine A's blog with his<a href="http://www.preemiedays1.blogspot.com/" target="_blank"> brother's</a> so I can update on them both in one blog! Both boy's are in therapy this summer and are doing great! I am extremely pleased with baby brothers progress!<br />
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I am hoping to get back to some fun learning activities with the boy's soon, I hope everyone is having a great summer!<br />
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Backyard fun! </div>
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Spending time at the Ronald McDonald House. </div>
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Baby Brother! </div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-61141552261947530072012-05-26T13:04:00.001-04:002012-05-26T13:04:05.534-04:00Summer school....or not?I have really been debating on what to do this summer. Should I continue to do lessons or take a break like the public school does? I have decided that we will do some academics this summer, maybe two times a week and then we will do fun learning activities during the rest of the week. My thoughts are reading and math two days a week and then fill the rest of the week with music, art, and nature studies, and pretty much anything the boy's want to do. I also want to fit one of our <a href="http://www.movingbeyondthepage.com/" target="_blank">"Moving Beyond the Page" </a>units in.<br />
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We will have a pretty busy summer, with therapy for both boy's, some pool time, and some field trips thrown in. I really want to take A to the theater and a couple of museums this summer. We will probably take a few weeks off in July just to relax (and so mommy can finally take a class she has been putting off for months). <br />
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I'm looking forward to a busy summer, and hopefully some relaxation thrown in there somewhere! I'll leave you with a picture of A, making dinosaur tracks in clay during our dinosaur unit! A loves learning about dinosaurs and he had actually already taught himself about these giant creatures, thanks to Netflix and dinosaur documentaries!<br />
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<br />Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-82144884249491861482012-05-22T16:10:00.000-04:002012-05-22T16:14:27.224-04:00Happy Birthday AI can't believe that A is six years old! We celebrated with a party at Chuck E Cheese! It was a spectacular day!<br />
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Hanging out with the mouse! </div>
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We had the best hostess, she made A feel very important! </div>
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Ticket Blaster Fun.</div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-42363424289839527702012-05-03T21:25:00.000-04:002012-05-03T21:25:53.298-04:00A awesome post about a awesome kid!<div style="text-align: center;">
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"A" during his reading lesson. </div>
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It's been a long time since I have wrote here. Things are going well for "A", homeschooling him was definitely the right thing to do right now. I have seen a lot of changes, and well to be honest, the child is so much happier now! We are finishing up our unit on Weather and will be studying Dinosaurs next. I continue to be amazed at his reading skills, he has flown through his second primer and I figure he is now reading on a mid to end of the year 1st grade level. Math is a little trickier for him, though we keep moving on with it! I am planning on continuing lessons in reading and math through the summer, but only for a couple of days a week. The rest of the time I plan on learning through play and discovery. The best kind of learning there is.<br />
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"A" having swim lessons and loving them! </div>
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Now I would like to talk a little bit about Asperger's. I haven't mentioned it much lately, probably because "A" is doing so well. It has really just become a part of who he is, just like being smart, quirky, funny, and having red hair and freckles is a part of who he is. I was in a discussion in a facebook group and I made the following comment:<br />
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"I guess what I am trying to say is that Autism does not always mean what a lot of people think it does, I get very frustrated with that sometimes. People expect my son to be either intellectually delayed or some kind of savant, actually he is just a smart, funny, quirky, little boy who sometimes gets anxious and melts down due to sensory overload and who would rather play a video game and be on the computer than play T-ball, guess what that is okay, it's who he is....and I love him for it!"<br />
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After this post I realized this is exactly what I want to tell a lot of people, that it is okay if my son doesn't play ball, or become a social butterfly, it's okay if he decides one day that he would rather spend his senior year writing computer programs than going on the school trip and to the prom. It doesn't make him any less or any better than any other child, don't feel sorry for him because I'm sure he'll be just as happy programming computers as your child will be punting a football. It takes all kinds of different people to make this world go. Einstein didn't even speak until he was four, but that isn't what he is remembered for, he is remembered for so much more! So if you read this, now you know how I feel!<br />
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"A" with baby brother during a outing. </div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-53955614066378643752012-03-18T14:50:00.002-04:002012-03-18T14:54:05.216-04:00More home school updates...and our little break!I know in my last post that I didn't want to use a pre-made curriculum and workbooks, well I stand by that decision (at least the workbook part). After becoming increasingly frustrated with my son's math (the only workbook we have been using), I have decided to use <a href="http://www.movingbeyondthepage.com/" target="_blank">Moving Beyond the Page</a>, a hands on curriculum that uses a unit study approach. For math I am going to try<a href="http://www.movingbeyondthepage.com/curriculumMath.asp" target="_blank"> Right Start Math.</a> We should be getting both of these in the mail soon, so I will let you know how it is going! We did a unit on habitats last week and ended it with a fun field trip to our local state park. Next week we are going to study Ireland, a field trip to visit <a href="http://dollywood.com/" target="_blank">Dollywood's</a> Festival of Nations is being planned in the near future! We decided to take a week off from lessons (a early Spring break) and visit a waterpark resort in the Smoky Mountains! We also visited the <a href="http://www.wonderworksonline.com/pigeon-forge/" target="_blank">Wonderworks museum! </a>We had a blast!<br />
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</div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-81302515351194271702012-02-12T13:29:00.000-05:002012-02-12T13:29:30.205-05:00Homeschooling perks!Hi everyone. I am busy today trying to pull my lessons together for next week. I guess it would be easier to do a pre-made curriculum, but I hate the idea of being tied down to workbooks for everything. We do use a workbook for math, but that's it. I think we will do a unit on winter this week, and "A" is still reading from his primer. We have a few letter blends to learn this week in reading.<br />
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Last week went well, we actually got ahead in reading, I am glad for that! I got a call last week from the UVA medical center asking if they could see "A" earlier due to a cancellation. I said yes, then went into a frenzy trying to pull together medical records. The trip was about four hours one way, so that of course took a whole day and then we needed the next day for some much needed rest!<br />
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We will have to catch up a little with math this week, but do I feel guilty? No, that is the joy of homeschooling! We are planning a visit to the lovely <a href="http://www.mypigeonforge.com/" target="_blank">Pigeon Forge</a> area for a stay at a<a href="http://www.wildernessatthesmokies.com/" target="_blank"> indoor water park</a> in the near future, I am sure I can work something educational into that, there are some wonderful educational opportunities in Pigeon Forge!<br />
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I am finding many "perks" to homeschooling! We can sleep in a extra hour and still get our lessons done by lunch! We can take awesome field trips to water parks! I don't have to feel guilty any more about missing school for medical appointments, and everything can be turned into a opportunity for learning!<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-kOUNXy4f9Zw/TzgEFxaTcAI/AAAAAAAAAzk/Ahkb1RrTm1o/s1600/alex.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="http://1.bp.blogspot.com/-kOUNXy4f9Zw/TzgEFxaTcAI/AAAAAAAAAzk/Ahkb1RrTm1o/s400/alex.jpg" width="400" /></a></div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-56896385978736768262012-02-06T16:26:00.000-05:002012-02-06T16:26:04.921-05:00Another Magnificent Monday!It is so unusual to be excited about Mondays, but I am now. Things have changed so much since I started homeschooling "A", even<a href="http://www.preemiedays1.blogspot.com/" target="_blank"> baby brother </a> seems happier, I think a lot of stress and anxiety has been removed from our household. "A" wakes up ready to do his school work, he seems like he is having fun.<br />
Two weeks ago I could barely get him to put three sounds together to make a word and today he read word's like<i> John, look</i>, and<i> that. </i>The reading<a href="http://onlinereadingteacher.com/" target="_blank"> curriculum</a> we are using seems to be working! So far math is going good, I started him at the beginning of the Kindergarten Horizons math workbook, it is a lot of review for him but he is flying through it, doing several lessons a day. I am sure it will slow down a little when we get into some of the harder concepts. We ended our lessons today with our unit study,<a href="http://www.unitstudy.com/RockingRobots.html" target="_blank"> "Rocking Robots" </a>. Alex is enjoying learning about all the things robots can do, especially the fact that they have been to Mars! In today's unit study we also talked about the Solar system. We have had a great start to the week and we are both pleased!<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://4.bp.blogspot.com/-AH9yla2tmM8/TzBDkn9Q0fI/AAAAAAAAAzc/XUNdO0wxgO8/s1600/20120206_4.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="http://4.bp.blogspot.com/-AH9yla2tmM8/TzBDkn9Q0fI/AAAAAAAAAzc/XUNdO0wxgO8/s400/20120206_4.JPG" width="400" /></a></div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-3541161909786733372012-02-04T14:57:00.001-05:002012-02-04T21:46:41.537-05:00And the journey begins....We have been homeschooling for about two weeks now. Things are starting to fall into place. We took it slow for the first couple of weeks, so we could both get used to the change. Homeschooling is pretty awesome. I am surprised that A does his lessons so well with minimum fuss. We have been concentrating mainly on reading and math for the past two weeks, and we have read a few books from the library for science and history, we have learned about George Washington in history and about shadows in science. We also started reading "Moby Dick".<br />
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During the past two weeks we have worked on reading skills and phonics, and we have reviewed in math. We enjoyed morning story time at our local library last Tuesday and we were able to meet a local home school family for lunch one day!<br />
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We got our new <a href="http://www.christianbook.com/horizons-math-grade-k-complete/9780740303135/pd/12050?event=1016AOSBF|308129|61266" target="_blank">Horizons</a> math book and the<a href="http://onlinereadingteacher.com/" target="_blank"> Pecci</a> reading series in the mail last week so we are ready to take off. I am waiting on <a href="http://store.oblockbooks.com/the-best-of-the-mailbox-science-grades-prek-k/" target="_blank">science</a>, <a href="http://store.oblockbooks.com/the-best-of-the-mailbox-social-studies-grades-k-1/" target="_blank">social studies</a>, and<a href="http://www.christianbook.com/growing-in-grace-childrens-bulletins-ages/linda-standke/9781594412936/pd/412930" target="_blank"> bible</a>. I have also decided to do some unit studies. I downloaded a few from <a href="http://www.unitstudy.com/" target="_blank">Unit Studies by Amanda Bennet</a> and I let A choose which one he wants to do next week! He chose a unit about <a href="http://www.unitstudy.com/RockingRobots.html" target="_blank">Robots</a>! I am looking forward to a fun week next week, one full of learning! <a href="http://www.unitstudy.com/"></a><br />
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</tbody></table>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-1596052860995716822012-01-26T12:41:00.000-05:002012-01-26T12:41:38.666-05:00A new journey for "A" and myself...I am disappointed that things were not working out at school like I thought they would. I had great hopes when "A" started school. So we are now entering a new journey, I have decided to home-school "A". I am nervous about this. I know I have the education necessary to do this, but this is a huge responsibility. We started today, we are pretty much winging it right now as we wait on some important materials to arrive in the mail. Here is how our morning went; wake up, meltdown, breakfast and a story, math (which I have discovered he is a little confused about, we are going to have to back up and review), reading, and a huge meltdown caused by a mistake Alex made on a worksheet. He expects things to be perfect and it is hard to make him understand that it is okay to make a mistake. We are finished for the day now, I am trying to gradually add a little more every day and hope this decreases meltdowns. I think once we get our new routine things will really start looking up. We are going to take a trip to the library to find some books for Science and Social Studies and I hope to start those subjects next week, I plan on making them fun, after all, this is Kindergarten!<br />
<div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-VnRU6cp6mVE/TyGP2tmmIrI/AAAAAAAAAxk/h0ysm9FT5iY/s1600/Jan.+2012+028.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="http://3.bp.blogspot.com/-VnRU6cp6mVE/TyGP2tmmIrI/AAAAAAAAAxk/h0ysm9FT5iY/s320/Jan.+2012+028.JPG" width="320" /></a></div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-60396494406025281482012-01-04T21:28:00.000-05:002012-01-04T21:28:40.303-05:00"Mommy I want to be a Fry Cook........"The moment she finds out a baby is on the way every mother starts dreaming. The moment I knew I was having a boy I imagined a lot of things. I saw him in Kindergarten, the teachers pet, every one's best friend. I saw him as a football star, the homecoming king.....Of course as all parents know dreams are dreams, and reality is often what we face. But, does that kill our dreams? No, I still dream for my child, I always will.<br />
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</div><div>The other day he came to me and said "mommy, when I grow up can I be a fry cook"? Well, I sat there for a moment and looked at this intelligent, quirky, little child, with his red hair and those rosy red cheeks. I know now he will probably not become a football star, he could, but I have been told that he probably wouldn't be crazy about competitive sports. Well, I changed the dream a little. If not a football star what is stopping him from being a musician, or he can't he excel in Martial Arts? I know he isn't going to be a social butterfly, he may not even want to go to his prom and that is okay. He loves computers, maybe he'll be writing programs by the time he is a teenager, maybe he'll invent something! </div><div><br />
</div><div>But....a Fry Cook? Hmmmmmmmmmm.........</div><div><br />
</div><div>So I gave my little man a hug and said, "Well, I'll tell you what. The thing mommy wants for your the most is for you to be happy, so if you grow up and decide that being a fry cook makes you happy, then you go right ahead"! I'll be just as proud of my fry cook as I would have been of my engineer, or my musician! Because I want him to be happy in whatever he decides to do! That is my prayer for him, a long, happy, life!<br />
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I hope each of you had a very Merry Christmas and a Blessed New Year! </div><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-DK5cmAJf_PI/TwUJvI_hp5I/AAAAAAAAAxM/pAo0YzRsfmw/s1600/Christmas+2011+001.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="http://3.bp.blogspot.com/-DK5cmAJf_PI/TwUJvI_hp5I/AAAAAAAAAxM/pAo0YzRsfmw/s320/Christmas+2011+001.JPG" width="320" /></a></div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-31118568416562285952011-12-23T09:43:00.001-05:002011-12-23T09:47:50.163-05:00A letter of great importance, please read...<div class="meta" style="background-color: white; margin-bottom: 5px; margin-left: 0px; margin-right: 0px; margin-top: 0px; overflow-x: hidden; overflow-y: hidden; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><div class="info" style="float: left; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; width: 550px;"><h2 style="color: #3a3a3a; font-family: QlassikMediumRegular, Tahoma, Arial, sans-serif; font-size: 24px; font-weight: normal; line-height: 24px; margin-bottom: 5px; margin-left: 0px; margin-right: 0px; margin-top: 6px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;"><a href="http://thelifeunexpected.com/archives/1705" style="color: black; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; outline-color: initial; outline-style: initial; outline-width: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; text-decoration: none;">Dear School Personnel, Community Members, Teachers, Parents and Neighbors</a></h2><div style="padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="color: #3a3a3a; font-family: Georgia, Palatino, 'Palatino Linotype', Times, 'Times New Roman', serif; font-size: 12px; line-height: 21px;"> A wonderful blog post I found Posted by </span><span class="gray" style="color: #929292; font-family: Georgia, Palatino, 'Palatino Linotype', Times, 'Times New Roman', serif; font-size: 12px; font-style: italic; line-height: 21px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; text-decoration: none;"><a href="http://thelifeunexpected.com/archives/author/marianne" style="color: #929292; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; outline-color: initial; outline-style: initial; outline-width: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; text-decoration: none;" title="Posts by Marianne">Marianne</a> ,</span><span class="gray" style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: Georgia, Palatino, 'Palatino Linotype', Times, 'Times New Roman', serif;"><span style="font-size: 12px; line-height: 21px;"> re-posted here with permission, original post can be found on the blog </span></span></span><span class="gray" style="color: #929292; font-family: Georgia, Palatino, 'Palatino Linotype', Times, 'Times New Roman', serif; font-size: 12px; font-style: italic; line-height: 21px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; text-decoration: none;"> <a href="http://www.thelifeunexpected.com/archives/1705" target="_blank">The Life Unexpected</a>. </span></div></div></div><div class="clearfix" style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 19px; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"></div><img alt="letter" class="left blogimg wp-post-image" height="309" src="http://thelifeunexpected.com/wp-content/uploads/2011/06/letter.gif" style="background-color: white; border-bottom-width: 0px; border-color: initial; border-image: initial; border-left-width: 0px; border-right-width: 0px; border-style: initial; border-top-width: 0px; color: #3a3a3a; display: block; float: left; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 19px; margin-bottom: 15px; margin-left: 0px; margin-right: 20px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; top: 0px; vertical-align: bottom;" title="letter" width="367" /><br />
<div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">To Whom it May Concern,</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I am the parent of a special needs child. I was overwhelmed, confused, heart broken and struggling to unravel the complexities before me.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">Please do not pass judgement of me without knowing why I did not attend the school PTA breakfasts or community picnics. Please take a few minutes to understand why I did not take you up on your offer to have lunch or grab a cup of coffee. Although we see each other in the supermarket or at school functions, I don’t think you really ever knew me, actually, I can guarantee that you did not know me because just as my child was different, so was I.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I was in survival mode to keep my family in tact and to give my child the best quality of life possible.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I was presented with parental decisions that have torn me apart and kept me up more nights than I can possibly remember.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I had spent most days of the week at therapy and doctors appointments and most nights up researching treatments and medication options.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I was forced into isolation at times due to the stigma and misconceptions that are epidemic in our society.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I became proficient at prioritizing my life and learning to let the little things go, to look at others with compassion instead of tabloid material and to turn a blind eye to the stares or ignorant comments.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I did the best I could.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I survived.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I am one of the lucky ones, my child has blossomed and has exceeded all our expectations.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">I have now become strong, I have become confident and I have become a fierce advocate for parents of special needs children. The growth did not come without much pain and many tears but it came.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">So I ask you, please</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><a href="http://thelifeunexpected.com/wp-content/uploads/2011/06/reaching-out.jpg" style="color: #aeaeae; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; outline-color: initial; outline-style: initial; outline-width: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; text-decoration: none;"><img alt="" class="alignleft size-full wp-image-1711" height="183" src="http://thelifeunexpected.com/wp-content/uploads/2011/06/reaching-out.jpg" style="border-bottom-style: none; border-bottom-width: 0px; border-color: initial; border-color: initial; border-image: initial; border-left-style: none; border-left-width: 0px; border-right-style: none; border-right-width: 0px; border-style: initial; border-top-style: none; border-top-width: 0px; border-width: initial; margin-bottom: 0px; margin-left: 0px; margin-right: 20px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px; vertical-align: bottom;" title="reaching-out" width="250" /></a></div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you see a parent struggling with a raging child, a child terrified to go into school, a child making odd movements or sounds, a child that seems to be in a world of their own… .Be kind. Give a smile of recognition for what that parent is going through. Ask if there is anything you can do to help, give them a pat on the hand or offer for them to go ahead of you on line.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you have a birthday party for your child remember that their child has a hard time with a lot of sensory issues and social situations. Please send their child that invitation and know that more times than not they will not be able to attend but appreciate being included. Understand that in order for their child to go to the party they may need to stay for a little while and please make them feel welcome. When they let you know that their child cannot make the party consider inviting that child for a one on one playdate or an outing at the park.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you are grading homework papers please understand that their child struggles, some with learning disabilities others with the exhaustion of their disorders or the obsession with perfectionism. The Perfectionism is not necessarily to have the answers right but to have it “feel” right for them. They have spent hours doing what most can do in ten minutes. A paper returned with red circles and comments only hurts a child’s self esteem and causes school anxiety. Please understand that when they see the school come up on their caller ID their hearts sink, remember to tell them about all the gains their children are making as well as their deficits. Take a minute before that call and know that they appreciate all you do and want a collaborative relationship in their child’s education.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you are in the teachers lounge, please do not discuss their child. Please do not make negative comments about their parenting or their child’s behavior, it gets back to them and it gets back to other parents in their community.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you pass the cafeteria and see their child sitting alone please consider inviting that child to eat lunch in your classroom and be your helper that period. Consider working with a guidance counselor to set up a lunch buddy group in a different area.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time they are at the CSE meeting planning their chid’s IEP know that they are educated, informed and confident knowing special education law. Know that they have found the courage to stand up to conformity and will explore every option to give their child the differentiated educated that will show their gifts and not just their disabilities. Understand that educating a child with special needs is one of the most difficult tasks a parent can face, know that the last thing they want is an adversarial relationship. Please show them the same respect they show you.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you are creating an educational plan please take into consideration that their child may have specific interests or obsessions. Foster those interests, instead of taking away that art class for a resource class consider adding an art class instead. Think outside the box, these parents do.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you see that child in a wheelchair unable to speak or control their movements, don’t stare, don’t look away, say hello. Do not assume that because this child is nonverbal that they are not intelligent or do not understand the awkwardness that you feel. Take a moment out of your day to show kindness, support a parent enduring incredible pain and just give them a smile.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time your child comes home telling you how Johnny or Susie is so weird, take the time to teach about differences. Take the time to talk about compassion, acceptance and special needs. Please remember that your child learns from you. Be a role model, mirror respect and discourage gossip.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you hear a comment about how out of style these kids are, educate about tactile sensitivities and the fact that these kids cannot tolerate many textures and fits. Imagine what it would feel like to have sandpaper in your stilettos or tight elastic holding on your tie.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you see an out of control child do not assume it is bad parenting. Understand that many of these disorders have an organic basis, are biological and are real illnesses. When you hear the words mental illness, take out the “mental” and remember ”illness”.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">Know that it is this generation that can stomp the stigma and create a world of acceptance.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time other parents are talking about “Those Kids” be our heroes, stand up for us.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">The next time you see a special needs child know they are not just special in their needs but in their brilliance as well.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">Take the time to meet our children. Take the time to know us.</div><div style="background-color: white; color: #3a3a3a; font-family: Tahoma, 'Trebuchet MS', Arial, sans-serif; font-size: 13px; line-height: 21px; padding-bottom: 10px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><br />
</div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com0tag:blogger.com,1999:blog-8071513431725196847.post-58015566328730430622011-11-12T15:27:00.000-05:002011-11-12T15:27:37.697-05:00A afternoon with my little man!<div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-dwI8E07FeOw/Tr7VoadG3QI/AAAAAAAAAv4/qsKYOtj4_hE/s1600/005.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" nda="true" src="http://1.bp.blogspot.com/-dwI8E07FeOw/Tr7VoadG3QI/AAAAAAAAAv4/qsKYOtj4_hE/s320/005.JPG" width="320" /></a></div><div style="text-align: center;"> Growing up so fast!</div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-oxGCmpGaZUw/Tr7Vy8E11dI/AAAAAAAAAwA/OXLTjAfDiq4/s1600/010.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" nda="true" src="http://1.bp.blogspot.com/-oxGCmpGaZUw/Tr7Vy8E11dI/AAAAAAAAAwA/OXLTjAfDiq4/s320/010.JPG" width="320" /></a></div><div style="text-align: center;"> Silly boy! </div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/-UFSfz3D6RWc/Tr7V9UrceXI/AAAAAAAAAwI/n8Y3uJJRsio/s1600/011.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" nda="true" src="http://2.bp.blogspot.com/-UFSfz3D6RWc/Tr7V9UrceXI/AAAAAAAAAwI/n8Y3uJJRsio/s320/011.JPG" width="320" /></a></div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/-8hsJ-ZYQVjU/Tr7WHeqCPXI/AAAAAAAAAwQ/pI4Tu1i9D30/s1600/012.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" nda="true" src="http://3.bp.blogspot.com/-8hsJ-ZYQVjU/Tr7WHeqCPXI/AAAAAAAAAwQ/pI4Tu1i9D30/s320/012.JPG" width="320" /></a></div><div align="center">He loves his dog! </div>Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-30978834755312273862011-10-15T11:32:00.000-04:002011-10-15T11:32:12.435-04:00Drama, Drama, Drama, and ALWAYS tape your IEP meetings!Well we finally had a meeting at school concerning "A" being suspended. It amazed me that some in attendance felt the meeting was unnecessary, considering how high my son is academically. I wonder how many of those people would have just stood by while their Kindergartner was suspended, then I hear that the "hitting" incident was most likely accidental? Wow! Personally they don't realize how nice I am being about it. I have had several advocates advise me that I should file state complaints and/or a complaint with VOPA. I do know that I will be keeping a very close eye on things from now on. <br />
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Now lets move on to happier things. In spite of all the drama (and that is what it really is) "A" is doing well in school. Academically he is kind of brilliant if I have to say so myself, but this is not a new revelation to me, I knew this when he started speaking well above average when he wasn't even a year old! I knew this when he was memorizing songs and singing them at 15 months old, he is a smart kid! <br />
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I am being told that the sensory issues that are so rampant in Alex's life and even noted at recent OT and PT evaluations are non existent at school. Personally I have my own views on that and I won't go into that here at this time. <br />
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Alex also is quite the social butterfly at school according to the powers that be, great for a child with Asperger's. I am thankful he gets along with the other children (when he isn't being suspended for "accidentally" hitting them). But, I also know what he comes home and tells me, I don't think what the teachers imagine they are seeing and how he perceives the situation are the same thing at all. But, you can't always argue with the "professionals" after all who am I? I am just his mom, who also just happens to have a degree in Education and several Masters level courses toward a degree in Special Education, what do I know about any of it?<br />
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After giving the proper 24 hours notice I taped the IEP meeting. Best decision ever, I will be taping all of our IEP meetings from now on! As I listened to the tape I was amazed at how much I forgot, and also at some of the things I heard! I would advise all parents to consider taping IEP meetings. Check your state and county regulations!Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1tag:blogger.com,1999:blog-8071513431725196847.post-44123189920193166572011-10-04T13:52:00.003-04:002011-10-04T13:52:49.162-04:00<div class="separator" style="clear: both; text-align: center;">
<a href="http://3.bp.blogspot.com/-LdBMzWDc0nY/TotEHyIzvmI/AAAAAAAAAvA/-0HvlcolOAw/s1600/alx.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" kca="true" src="http://3.bp.blogspot.com/-LdBMzWDc0nY/TotEHyIzvmI/AAAAAAAAAvA/-0HvlcolOAw/s320/alx.jpg" width="320" /></a></div>
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Getting Sleepy! </div>
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It's been a long time. I don't know where to start. We ended school last year with some measure of success. Meaning we were having more good days than bad and "A" was actually learning something. We started Kindergarten the same way, we had weeks of "good" days, "A" is learning, learning, learning, I am not surprised, he is a extremely intelligent child. What bothers me is when the learning stops, when a child who was at one time deemed "to intelligent for a IEP" ( I kid you not, can you believe someone would say that), well when this child starts struggling again, when the worksheets are sent home not completed on a almost daily basis. When he tells me: "I hate school", "I'm tired of doing the same thing every day", "I hate singing songs, I hate worksheets, worksheets, worksheets", and to top it all.... when my five year old is suspended for behavior that is a direct manifestation of his disability, not new behavior, but behavior that has been going on since Pre-k. All of those things bother me.<br />
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I have been told by at least one professional that the only way my child would reach his full potential is to remove him from public school, I have been told by yet another professional that I would do him a great disservice if I pull him from public school. I just know I am tired.....<br />
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I'm tired of having to fight every day for the education my child deserves. I'm tired of notes from teachers saying that "he is acting like a regular Kindergarten child" one week, and then a suspension two weeks later. I am tired of people not doing their jobs, not following his IEP, not trying to make the classroom environment conducive for learning. <br />
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You can't put all children into a pot and expect them to learn the same way, you can't expect them to be happy, you can't expect them to conform. I have a education degree, I am not the dumb "crazy" mom they suppose me to be....I studied some Psychology as well. I know all about Gardner's <a href="http://www.indiana.edu/~intell/mitheory.shtml">Theory of multiple intelligences</a>.... I know that even "typical" children learn differently, it is not a one size fits all model. So what I really have to wonder is...How do ANY of our children ever learn anything? <br />
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Yes I guess I am in a bad mood. So I am going to find something to be thankful for. Sometimes it is hard to be thankful, I mean I ask myself on a daily basis, why me, why my children? I know things could be a lot worse though. So here are a few things I am thankful for:<br />
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<ul>
<li>I am thankful for my children, I am thankful their little quirks and how they make life so interesting, I really can't imagine them not being just who they are.</li>
</ul>
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<ul>
<li>I am thankful for the many wonderful people God has put in my life, the people I would have never met had it not been for our situation. People who are a blessing in many ways, some of them don't even know it.</li>
</ul>
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<ul>
<li>I am thankful that things aren't worse, I am thankful to be able to hear my children's sweet voices, I am thankful every time one of them climbs on my lap and says "I love you". </li>
</ul>
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<ul>
<li> I am thankful to be able to hold them in my arms, I know all to well what empty arms feel like. </li>
</ul>
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<ul>
<li>I am thankful to God, though I know at times I feel so alone, God is always there, even in the times that it feels he is so far away, there is always that small whisper.</li>
</ul>
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<span style="font-family: Times, "Times New Roman", serif;">"Let your conversation be without covetousness; and be content with such things as ye have: for he hath said, I will never leave thee, nor forsake thee"</span> Hebrews 13:5.<br />
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"A" with his friend! </div>
Denisehttp://www.blogger.com/profile/00075033775780048055noreply@blogger.com1